HR 382

Abstract

Declares June 9, 2025 as Batten Disease Awareness Day in the State of Illinois in order to recognize and bring awareness to the rare disease population, including those living with Batten disease in Illinois, and to recognize the heroic and tireless efforts of Dr. Elizabeth Berry-Kravis and her esteemed colleagues at Rush University Medical Center as they attempt to save children afflicted with Batten disease by searching for treatments and a cure. Commends Charlie Sims for advancing the scientific development of treatments for Batten disease for children everywhere, his family and friends for valiantly facing the difficulties of Batten disease, and the ongoing efforts of Team Charlie in their continued work of finding hope, giving love, and being good.