HB 4093

  • Illinois House Bill
  • 103rd Regular Session
  • Introduced in House
  • House
  • Senate
  • Governor

Health Data Privacy Act

Abstract

Creates the Protect Health Data Privacy Act. Provides that a regulated entity shall disclose and maintain a health data privacy policy that clearly and conspicuously discloses specified information. Sets forth provisions concerning health data privacy policies. Provides that a regulated entity shall not collect, share, or store health data, except in specified circumstances. Provides that it is unlawful for any person to sell or offer to sell health data concerning a consumer without first obtaining valid authorization from the consumer. Provides that a valid authorization to sell consumer health data must contain specified information; a copy of the signed valid authorization must be provided to the consumer; and the seller and purchaser of health data must retain a copy of all valid authorizations for sale of health data for 6 years after the date of its signature or the date when it was last in effect, whichever is later. Sets forth provisions concerning the consent required for collection, sharing, and storage of health data. Provides that a consumer has the right to withdraw consent from the collection, sharing, sale, or storage of the consumer's health data. Provides that it is unlawful for a regulated entity to engage in discriminatory practices against consumers solely because they have not provided consent to the collection, sharing, sale, or storage of their health data or have exercised any other rights provided by the provisions or guaranteed by law. Sets forth provisions concerning a consumer's right to confirm whether a regulated entity is collecting, selling, sharing, or storing any of the consumer's health data; a consumer's right to have the consumer's health data that is collected by a regulated entity deleted; prohibitions regarding geofencing; and consumer health data security. Provides that any person aggrieved by a violation of the provisions shall have a right of action in a State circuit court or as a supplemental claim in federal district court against an offending party. Provides that the Attorney General may enforce a violation of the provisions as an unlawful practice under the Consumer Fraud and Deceptive Business Practices Act. Defines terms. Makes a conforming change in the Consumer Fraud and Deceptive Business Practices Act.

Bill Sponsors (19)

Votes


Actions


Apr 19, 2024

House

Rule 19(a) / Re-referred to Rules Committee

Apr 18, 2024

House

Added Co-Sponsor Rep. Kevin John Olickal

Apr 17, 2024

House

Held on Calendar Order of Second Reading - Short Debate

House

Second Reading - Short Debate

Apr 15, 2024

House

Added Co-Sponsor Rep. Robert "Bob" Rita

Apr 11, 2024

House

Added Co-Sponsor Rep. Nabeela Syed

Apr 10, 2024

House

Added Co-Sponsor Rep. Diane Blair-Sherlock

Apr 03, 2024

House

Placed on Calendar 2nd Reading - Short Debate

House

Do Pass / Short Debate Judiciary - Civil Committee; 010-003-000

Mar 22, 2024

House

Added Co-Sponsor Rep. Lilian Jiménez

House

Added Co-Sponsor Rep. Norma Hernandez

Mar 12, 2024

House

Assigned to Judiciary - Civil Committee

Feb 26, 2024

House

Added Co-Sponsor Rep. Abdelnasser Rashid

Feb 23, 2024

House

Added Co-Sponsor Rep. Janet Yang Rohr

Feb 22, 2024

House

Added Co-Sponsor Rep. Kelly M. Cassidy

Feb 15, 2024

House

Added Co-Sponsor Rep. Maura Hirschauer

House

Added Co-Sponsor Rep. Eva-Dina Delgado

Feb 14, 2024

House

Added Co-Sponsor Rep. Rita Mayfield

House

Added Co-Sponsor Rep. Dagmara Avelar

House

Added Co-Sponsor Rep. Theresa Mah

House

Added Co-Sponsor Rep. Katie Stuart

House

Added Co-Sponsor Rep. Jennifer Gong-Gershowitz

House

Added Co-Sponsor Rep. Lindsey LaPointe

House

Added Co-Sponsor Rep. Anne Stava-Murray

May 16, 2023

House

First Reading

House

Referred to Rules Committee

House

Filed with the Clerk by Rep. Ann M. Williams

Bill Text

Bill Text Versions Format
Introduced HTML PDF

Related Documents

Document Format
No related documents.

Sources

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