SB 1105

  • Illinois Senate Bill
  • 101st Regular Session
  • Introduced in Senate Apr 10, 2019
  • Passed Senate Apr 10, 2019
  • House
  • Governor

Dhfs-Pediatric Palliative Care

Abstract

Amends the Seizure and Forfeiture Reporting Act. Makes a technical change in a Section concerning the short title. Senate Floor Amendment No. 1 Deletes reference to: 5 ILCS 810/1 Adds reference to: 305 ILCS 60/5 305 ILCS 60/10 305 ILCS 60/15 305 ILCS 60/20 305 ILCS 60/25 305 ILCS 60/30 305 ILCS 60/35 305 ILCS 60/37 new 305 ILCS 60/40 305 ILCS 60/45 305 ILCS 60/3 rep. Replaces everything after the enacting clause. Amends the Pediatric Palliative Care Act. Repeals a provision that made the Act inoperative on and after July 1, 2012. Makes changes to the legislative findings. Provides that the General Assembly finds that each year, approximately 1,500 (rather than 1,185) Illinois children are diagnosed with a serious illness (rather than with a potentially life-limiting illness); and that community-based pediatric palliative services have been shown to keep children out of the hospital by managing many symptoms in the home setting, thereby improving childhood quality of life while maintaining budget neutrality. Requires the Department of Healthcare and Family Services to develop a pediatric palliative care program (rather than a pediatric palliative care pilot program) under which a qualifying child may receive community-based pediatric palliative care from a trained interdisciplinary team and may also choose to continue to pursue aggressive curative or disease-directed treatments for a serious (rather than a potentially life-limiting) illness under the benefits available under Article V of the Illinois Public Aid Code. Defines a qualifying child to be a person under the age of 19 (rather than 18) who is enrolled in the medical assistance program under the Illinois Public Aid Code and who suffers from a serious illness (rather than a potentially life-limiting medical condition). Requires the Department to apply to the federal Centers for Medicare and Medicaid Services for a State Plan amendment to implement the program. Requires the Department to implement the State plan amendment within 12 months of the date of federal approval. Prohibits the Department from drafting any rules in contravention of this timetable for program development and implementation. Removes all provisions concerning application for a federal Medicaid waiver program authorized under the Social Security Act. Expands the list of serious illnesses (rather than medical conditions) that render a person eligible for pediatric palliative care to include any other serious illness that the Department determines to be appropriate. In a provision concerning authorized providers, provides that at a minimum, a participating provider must house a pediatric interdisciplinary team that includes: (i) a physician, acting as the program medical director, who is board certified or board eligible in pediatrics or hospice and palliative medicine; (ii) a registered nurse; and (iii) a licensed social worker with a background in pediatric care. Requires all members of the pediatric interdisciplinary team to meet criteria the Department may establish by rule, including demonstrated expertise in pediatric palliative care (rather than requiring all members of the pediatric interdisciplinary team to submit to the Department proof of pediatric End-of-Life Nursing Education Curriculum (Pediatric ELNEC Training) or an equivalent). Expands the list of reimbursable services offered under the program to include any other services that the Department determines to be appropriate. Requires the Department, in consultation with interested stakeholders, to establish standards for and provide technical assistance to managed care organizations, as defined in the Illinois Public Aid Code, to ensure the delivery of pediatric palliative care services. Contains provisions concerning reporting requirements and criteria a case manager must meet for demonstrated expertise in pediatric palliative care.

Bill Sponsors (9)

Votes


Actions


Jun 28, 2019

House

House Floor Amendment No. 1 Rule 19(c) / Re-referred to Rules Committee

House

Rule 19(a) / Re-referred to Rules Committee

May 31, 2019

House

Final Action Deadline Extended-9(b) June 30, 2019

May 24, 2019

House

Final Action Deadline Extended-9(b) May 31, 2019

May 20, 2019

House

House Floor Amendment No. 1 Rules Refers to Appropriations-Human Services Committee

May 17, 2019

House

House Floor Amendment No. 1 Filed with Clerk by Rep. Jim Durkin

House

House Floor Amendment No. 1 Referred to Rules Committee

May 16, 2019

House

Held on Calendar Order of Second Reading - Short Debate

House

Recalled to Second Reading - Short Debate

May 14, 2019

House

Placed on Calendar Order of 3rd Reading - Short Debate

House

Second Reading - Short Debate

May 09, 2019

House

Added Alternate Chief Co-Sponsor Rep. Charles Meier

House

Added Alternate Co-Sponsor Rep. Robyn Gabel

House

Placed on Calendar 2nd Reading - Short Debate

House

Do Pass / Short Debate Appropriations-Human Services Committee; 015-000-000

Apr 29, 2019

House

Added Alternate Chief Co-Sponsor Rep. Tom Demmer

Apr 24, 2019

House

Assigned to Appropriations-Human Services Committee

Apr 10, 2019

House

Arrived in House

Senate

Recalled to Second Reading

Senate

Senate Floor Amendment No. 1 Adopted; Righter

Senate

Placed on Calendar Order of 3rd Reading

Senate

Third Reading - Passed; 053-000-000

House

Chief House Sponsor Rep. Jim Durkin

House

First Reading

House

Referred to Rules Committee

Apr 09, 2019

Senate

Senate Floor Amendment No. 1 Assignments Refers to Human Services

Senate

Added as Co-Sponsor Sen. Laura Fine

Senate

Senate Floor Amendment No. 1 Recommend Do Adopt Human Services; 008-000-000

Senate

Added as Chief Co-Sponsor Sen. Julie A. Morrison

Senate

Added as Chief Co-Sponsor Sen. Donald P. DeWitte

Senate

Added as Chief Co-Sponsor Sen. John F. Curran

Apr 05, 2019

Senate

Senate Floor Amendment No. 1 Filed with Secretary by Sen. Dale A. Righter

Senate

Senate Floor Amendment No. 1 Referred to Assignments

Apr 03, 2019

Senate

Chief Sponsor Changed to Sen. Dale A. Righter

Mar 07, 2019

Senate

Placed on Calendar Order of 3rd Reading March 12, 2019

Senate

Second Reading

Mar 06, 2019

Senate

Do Pass Executive; 016-000-000

Senate

Placed on Calendar Order of 2nd Reading March 7, 2019

Feb 20, 2019

Senate

Assigned to Executive

Jan 31, 2019

Senate

First Reading

Senate

Referred to Assignments

Senate

Filed with Secretary by Sen. William E. Brady

Bill Text

Bill Text Versions Format
Introduced HTML
Engrossed HTML

Related Documents

Document Format
House Amendment 001
Senate Amendment 001

Sources

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