HR 21

Abstract

Recognizes that Myalgic Encephalomyelitis (ME) is a tragic, disabling disease that destroys the lives of many patients and takes a severe toll on their families, friends, and caretakers. Recognizes and affirms the commitment of Illinois to improving the availability and quality of medical and supportive care for ME patients. Recommends that the National Institutes of Health fund ME research at a level commensurate with similarly burdensome disease. Encourages universities in Illinois to focus research attention on this underserved disease. Recommends that the Centers for Disease Control and Prevention disseminate new ME medical education, updated in accordance with the National Academy of Medicine recommendations, the recommendations of the United States Department of Health and Human Services' CFS Advisory Committee, and the best practices of disease experts. Encourages media organizations to inform the public about the seriousness of the disease.