Nicole Poore
- Democratic
- Senator
- District 12
Primary
This bill establishes the Delaware Rare Disease Advisory Council which, among other things, is intended to educate medical professionals, government agencies, legislators, and the public about rare diseases. There are about 7,000 known rare diseases, and they create major public health challenges. The Advisory Council is charged with engaging in activities intended to benefit rare disease patients in Delaware, including encouraging and securing funding for the development of new treatments for rare diseases.
Signed by Governor
Passed By House. Votes: 39 YES 2 ABSENT
Reported Out of Committee (Health & Human Development) in House with 3 Favorable, 6 On Its Merits
Passed By Senate. Votes: 21 YES
Amendment SA 1 to SB 55 - Passed By Senate. Votes: 20 YES 1 ABSENT
Assigned to Health & Human Development Committee in House
Amendment SA 1 to SB 55 - Introduced and Placed With Bill
Reported Out of Committee (Health & Social Services) in Senate with 7 Favorable
Introduced and Assigned to Health & Social Services Committee in Senate
| Bill Text Versions | Format |
|---|---|
| Bill Text | PDF HTML |
| SA 1 to SB 55 | HTML PDF |
| Document | Format |
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| No related documents. |
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