Rick Zbur
- Democratic
- Assemblymember
- District 51
Author
Existing law establishes the California Health and Human Services Agency, which includes the State Department of Public Health, among other state departments charged with the administration of health, social, and other human services. Under existing law, the State Department of Public Health has authority over various programs promoting public health, including genetic disease testing. This bill, upon appropriation by the Legislature, would establish within the agency, until January 1, 2029, the Jacqueline Marie Zbur Rare Disease Advisory Council appointed by the State Public Health Officer, as specified. The council would generally act as the advisory body on rare diseases to the Legislature and state and private entities that provide services to, or that are charged with the care of, persons with rare diseases. The council specifically would be required, among other duties, to publish on its web page publicly accessible resources on research, diagnosis, treatment, and education relating to rare diseases in California to foster recognition and access to treatment. The bill would require the council to report on its web page on the activities of the advisory council and its findings and recommendations on issues, as specified. The bill would make legislative findings and declarations in support of its provisions.
Approved by the Governor.
Chaptered by Secretary of State - Chapter 726, Statutes of 2024.
Enrolled and presented to the Governor at 3:30 p.m.
Senate amendments concurred in. To Engrossing and Enrolling. (Ayes 76. Noes 0.).
Assembly Rule 77 suspended.
In Assembly. Concurrence in Senate amendments pending. May be considered on or after August 30 pursuant to Assembly Rule 77.
Read third time. Passed. Ordered to the Assembly. (Ayes 40. Noes 0.).
Read second time. Ordered to third reading.
Read third time and amended. Ordered to second reading.
Read second time. Ordered to third reading.
From committee: Do pass. (Ayes 6. Noes 0.) (August 15).
Read second time and amended. Re-referred to Com. on APPR.
From committee: Amend, and do pass as amended and re-refer to Com. on APPR with recommendation: To Consent Calendar. (Ayes 11. Noes 0.) (June 26).
In Senate. Read first time. To Com. on RLS. for assignment.
Read third time. Passed. Ordered to the Senate. (Ayes 72. Noes 0. Page 5494.)
Read second time. Ordered to third reading.
Coauthors revised.
From committee: Do pass. (Ayes 15. Noes 0.) (May 16).
In committee: Set, first hearing. Referred to APPR. suspense file.
Read second time and amended.
From committee: Amend, and do pass as amended and re-refer to Com. on APPR. (Ayes 16. Noes 0.) (April 23).
Introduced measure version corrected.
From printer. May be heard in committee March 16.
Read first time. To print.
| Bill Text Versions | Format |
|---|---|
| AB2613 | HTML |
| 02/14/24 - Introduced | |
| 04/25/24 - Amended Assembly | |
| 06/27/24 - Amended Senate | |
| 08/23/24 - Amended Senate | |
| 08/31/24 - Enrolled | |
| 09/27/24 - Chaptered |
| Document | Format |
|---|---|
| 04/19/24- Assembly Health | |
| 05/06/24- Assembly Appropriations | |
| 05/20/24- ASSEMBLY FLOOR ANALYSIS | |
| 06/24/24- Senate Health | |
| 08/02/24- Senate Appropriations | |
| 08/18/24- Sen. Floor Analyses | |
| 08/26/24- Sen. Floor Analyses | |
| 08/28/24- ASSEMBLY FLOOR ANALYSIS |
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